Fanconi Syndrome http://www.worthyfs.com Read how Markita Worthy celebrated her 31st birthday, having Fanconi's syndrome for 29 of those years. Also offers information about this rare disorder and links to further resources. | |
Alex and Matt Pearl http://www.alexandmatt.com Personal stories of two children fighting Fanconi Anemia. | |
Blackfan http://health.groups.yahoo.com Yahoo list group for Diamond Black Fan Anemia sufferers. | |
Family Village: Fanconi Anemia http://www.familyvillage.wisc.edu Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease. | |
Fanconi Anaemia http://www.cancerindex.org A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin. | |
Fanconi Anemia http://www.members.cox.net Discusses the genetics of this condition and treatment options. | |
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases http://www.mazornet.com Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources. | |
Fanconi Anemia Research Fund http://www.fanconi.org To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide. | |
Fanconi Anemia Web http://members.tripod.com An informational site for this disorder. | |
Fanconi Canada http://www.fanconicanada.org Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families. | |
Kaps for Kendall http://www.kapsforkendall.com In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers. | |